A mother-daughter quest to find fellow members of an ultra-rare genetic community
In this first-person account, the author describes a mother-daughter quest to find others in an ultra-rare genetic community. A pediatric geneticist had warned her not to google the condition, and it took her five years to disobey. The supplied context offers limited further detail.
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STAT — Biotech
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A mother-daughter quest to find fellow members of an ultra-rare genetic community
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